Jul 27, 2012

Shea

"What is REAL?" asked the Rabbit one day, when they were lying side by side near the nursery fender, before Nana came to tidy the room. "Does it mean having things that buzz inside you and a stick-out handle?" 

"Real isn't how you are made," said the Skin Horse. "It's a thing that happens to you. When a child loves you for a long, long time, not just to play with, but REALLY loves you, then you become Real." 

"Does it hurt?" asked the Rabbit. 

"Sometimes," said the Skin Horse, for he was always truthful. "When you are Real you don't mind being hurt." 

"Does it happen all at once, like being wound up," he asked, "or bit by bit?" 

"It doesn't happen all at once," said the Skin Horse. "You become. It takes a long time. That's why it doesn't happen often to people who break easily, or have sharp edges, or who have to be carefully kept. Generally, by the time you are Real, most of your hair has been loved off, and your eyes drop out and you get loose in the joints and very shabby. But these things don't matter at all, because once you are real you can't be ugly, except to people who don't understand." 
 
-Excerpt From the "Velveteen Rabbit"


When I began to write this post I decided to look at the above "Velveteen Rabbit" quote and it nearly brought me to tears.  Not only does it encompass the story of "Shea", but also the story of Jazz.  There have been times that she has been convinced that she is not a person and is not worth anything.  She even one day looked me in the eye, while at a doctor's appointment after I got hurt in the midst of one if her neuro-behavioral rages, and tearfully told me that it was time.  When I asked for what, she replied that it was time for her to be "put down" and that she was going to be brave and just let the doctor do it.  She was referring to the process in which a sick or rage filled animal is euthanized by a vet.  I still cry thinking about that statement she made.  She genuinely believed that she was not worthy of life anymore because of the mistakes she has made as a result of her TBI.

Jazz is frequently seen as "ugly" to those who do not know or understand her.  The Skin Horse in the story explained beautifully that life is not always easy and even hurts, but in the end it's worth it because of the love you receive that makes you real and understood by others.

Jazz has her own Velveteen Rabbit.  It is her stuffed puppy named, "Shea".  Shea is by all accounts real and she is a physical manifestation of the emotions within Jazz.  Shea was the first thing we ever bought for Jazz and they have inseparable ever since.  At first she was just named, "Puppy."  When Jazz was 3, she officially gave her the name, "Shea".  Shea has traveled everywhere with Jazz and has been through everything with her.  Often times Jazz would inform us that Shea was sad or angry.  Shea has been thrown, stepped on, vomited on, and loved more than any stuffy I have ever seen in my life.  Shea helped Jazz learn to express her feelings and see that no matter what happens: forgiveness is always waiting for her, even the biggest mess can be cleaned up and seem like brand new, and a hug can cure everything from a scrape to a wounded heart.

It doesn't matter how ugly a person's behaviors or words are, there is always more to the story and real emotions underneath it.  Our ability to feel and experience emotions not only makes us human, but real as well.  You cannot appreciate happiness without anger, nor joy without sadness.  At the end of our journey, we all end up with some loose joints, broken eyes, and weak skin.  However, as the old Skin Horse so wisely said, it is love that lasts the longest.  So please, never forget to love.  No one should ever miss out on the chance to become real, no matter who they are, where they came from, or what they have done.

Much Love!

Shea on their first day together

Shea a few months ago


Jul 16, 2012

Summer Fun

Living in Southern California has always provided us many opportunities for outdoor activities, outings, and trying new things in the summer time.  Jazz learned to swim at about 1-2 years old because she has always been drawn to water and is highly impulsive.  For safety reasons, we had to teach her early.  I thought it would be fun to put together a little collage from some of our favorite adventures over the years and a little preview of fun we have had so far this summer.  Hope it gives you ideas for your own summer fun with your kids.

Much Love!

Bike with training wheels (5yrs)
Digging for sand crabs (5yrs)
Warming up at the beach (5yrs)
Swimming Lesson fun (6yrs)
Stroke Development (6yrs)
Lake Tahoe (6yrs)
Fair (7yrs)
Swim Play Date (7yrs)
Sand people! (8yrs)
Cruise (8yrs)
Speed boat (9yrs)
Rock collecting (9yrs)
S'mores (9yrs)

Slip 'n slide (9yrs)
Skipping stones (10yrs)
Universal Studios (10yrs)
Playing catch (10yrs)


Hiking (11yrs)

Pottery (11yrs)

OC Fair (11yrs)

Kite flying (12yrs)



















Jul 10, 2012

"We are a Pre-teen"

As a graduation gift for my cousin and I, my dad sent us to Vegas with my mom and Jazz.  You see the three oldest cousins are all girls and all of us graduated with a different degree this summer (a point our grandmother enjoyed sharing with everyone), each one two weeks apart from the other.  I got my Master's and my cousin, Betsy, who went to Vegas with us got her Bachelor's.

The graduating cousins all in Atlanta for the first graduation for Natasha (Left to right: Me with Master's, Betsy with Bachelor's, and Natasha with PhD)



The same week of my graduation, Jazz turned 12.  This meant a shared birthday and graduation party as well as attending her third graduation ceremony in a month.  We were all bracing ourselves for the worst.  Jealousy, pouting, confusion...  She was amazing.  Family who had not seen her for a year could not believe how much maturity she gained in the last year (it's amazing what can happen when you remove someone from an environment that was causing them pain). 

Birthday/Graduation cake!
Though in many ways she is still about 5 years old, she has officially become a pre-teen.  And luckily for us, she rising to the challenge with more grace than any of us could have anticipated.

While on our Vegas trip experiencing all of the new joys we have with a special needs, pre-teen, girly girl running around, my cousin wrote this song that I think appropriately sums up our weekend and the early experiences of living with a special needs pre-teen thus far.  It is sung to the toon of the original "Flipper" theme song. 

Link to the theme song just in case you need a reminder: http://www.youtube.com/watch?v=EifnM3pRLdQ

"We are a Pre-teen"

We are a pre-teen, pre-teen, no one was ready
It happened one night, right before our eyes.
We know that pre-teens, live in a mirror
Obessessed over glitter, glitter on all things.

Exploring with make-up and glittery things.
Must brush my hair now and gaze in the mirror.
Hours have gone by and no shoes have appeared
And so we will be late once again.

We are a pre-teen, pre-teen, oh no not more glitter
Your hair looks fine and the blow dryer is breaking.
We must do all things now, with no one else's help.
What were we thinking, we just weren't ready!

Much Love!

On our Vegas trip we did one of those old-time photo shoots